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The very low birth weight transport goes home: impact on the family
Insights
Children born with very low birth weight (VLBW) experience ongoing health issues, impacting daily activities and increasing healthcare needs. Families face significant challenges, particularly those with fewer financial resources.
Area of Science:
- Pediatrics
- Neonatology
- Family Medicine
Background:
- Very low birth weight (VLBW) infants face increased health challenges post-hospital discharge.
- The impact of these health problems on medical care demands and family well-being requires further investigation.
Purpose of the Study:
- To assess the ongoing health problems of VLBW children.
- To evaluate the demand for medical care services by these children.
- To understand the impact of these health issues on family coping mechanisms and vulnerability.
Main Methods:
- Survey conducted on families of 132 children (1-4 years old) born weighing less than 1750g.
- Data collected on children's health status, daily activity limitations, and healthcare utilization.
- Analysis of factors predicting the perceived impact on families.
Main Results:
- 35% of VLBW children experienced limitations in daily activities.
- Significant healthcare utilization: 17% hospitalized in the prior year, 54% visited a doctor in the prior month.
- Key predictors of family impact: number of activity limitations, child's age, and family financial resources.
Conclusions:
- VLBW children continue to have significant health problems and require substantial healthcare services.
- Family vulnerability is associated with the severity of the child's health limitations and socioeconomic factors.
- Findings help identify families most at risk for coping difficulties with VLBW infant care.
Abstract:
Very low birth weight (VLBW) infants are known to experience more health problems after discharge from the hospital, but the effects of such problems in terms of the demand for medical care and of the effect of this on the family are only just beginning to be described. A survey of the families of 132 children who were born weighing less than 1750 g at mostly suburban hospitals and transported to a Children's Hospital, who were 1-4 years old at the time of the survey, has revealed that these children continue to experience health problems to the extent that 35% are limited in one or more activities of daily living. They also incur greater use of health care services (17% hospitalized in the prior year; 54% with a doctor's visit in the prior month). The most important predictors of high perceived impact of these problems on the family is related to the number of activities limited by health, the age of the child, and the financial resources the family could bring to coping with the child's care. These findings provide further characterization of the families which may be most vulnerable to the ongoing health problems of the VLBW infant.
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