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Modeling Lost to Intervention in Early Hearing Detection and Intervention: A Modified eDelphi Study.

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Summary

Families may decline early intervention for deaf or hard of hearing children due to various barriers. This study models these drivers to improve early hearing detection and intervention access.

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Area of Science:

  • Pediatrics
  • Audiology
  • Public Health

Background:

  • Early intervention is crucial for children identified as deaf or hard of hearing.
  • Understanding barriers to service uptake is essential for improving outcomes.
  • Existing literature highlights potential reasons for service non-adherence.

Purpose of the Study:

  • To develop a functional model identifying key drivers of service decline in early intervention for deaf or hard of hearing children.
  • To provide a theoretical framework for understanding family decisions regarding early intervention.
  • To inform strategies for enhancing enrollment in early intervention programs.

Main Methods:

  • A modified eDelphi method was employed for model development.
  • Expert consensus was sought from 155 invited specialists.
  • Two phases of feedback refined the model based on expert perceptions of intervention loss.

Main Results:

  • Five primary barriers to early intervention access were identified.
  • These barriers include family experience, culture, perceived vulnerability, benefits, and general barriers.
  • Specific examples illustrating these barriers across different contexts were documented.

Conclusions:

  • This research presents the first theoretical model of intervention loss in early hearing detection and intervention.
  • The model offers a foundation for future research into novel support strategies.
  • It highlights the need for targeted approaches to assist families during the enrollment process.