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A Neurodiversity-Oriented Approach to Address Autism Wandering as a "Problem Behavior" in Pediatrics
Emily Hotez1, Morénike Giwa Onaiwu2
1General Internal Medicine, David Geffen School of Medicine at University of California Los Angeles, Los Angeles, USA.
Insights
Pediatricians can help reduce autism wandering by addressing chronic stress and collaborating with families. A neurodiversity approach improves interventions for autistic children and enhances family well-being.
Area of Science:
- Neurodevelopmental Disorders
- Public Health
- Behavioral Pediatrics
Background:
- Wandering, or elopement, is a significant concern for autistic children, posing public health risks.
- Existing interventions for wandering often lack a comprehensive understanding of underlying mechanisms.
Discussion:
- Pediatricians can adopt a neurodiversity-affirming approach to address autism-related behaviors like wandering.
- Focusing on upstream factors such as chronic stress is crucial for effective intervention.
- Engaging families as experts and collaborating with relevant systems can improve outcomes.
Key Insights:
- Autism wandering is linked to chronic stress and requires a nuanced understanding.
- A neurodiversity perspective enhances the effectiveness of interventions for autistic individuals.
- Family-centered care and inter-system collaboration are vital for supporting autistic children.
Outlook:
- Future research should explore the efficacy of neurodiversity-informed interventions for wandering.
- Developing integrated support systems can improve the quality of life for autistic children and their families.
- Continued focus on addressing the root causes of "problem behaviors" in autism is essential.
Abstract:
Pediatricians are frequently tasked with addressing autism "problem behaviors," including wandering, defined as leaving the safety of a responsible person's care or a safe area (alternatively referred to as elopement). In the following commentary, we - as autism researchers and individuals with lived experience - discuss the prevalence and public health consequences of wandering. We conceptualize wandering in the context of "problem behaviors" for autistic individuals and describe the current state of the evidence on wandering prevention and intervention. We emphasize that pediatricians have a unique opportunity to optimize their efforts to address wandering - as well as related "problem behaviors" - utilizing a neurodiversity orientation. This will allow them to enact approaches that address the potential upstream mechanisms underlying wandering to make these efforts more effective and provide critical assistance to families. In this manuscript, we provide recommendations to pediatricians to more effectively address the mechanisms underlying and exacerbating these challenges to improve the health, well-being, and quality of life of autistic children and their families. In particular, we recommend that pediatricians focus efforts toward 1) addressing the link between chronic stress and "problem behaviors"; 2) engaging individuals, caregivers, and families as experts in their health and development; and 3) collaborating with the systems and sectors relevant to autistic individuals and their families.
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