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Referral Profile of Developmental Disabilities at a Tertiary Care Hospital in a Resource-limited Country
Sidra Kaleem Jafri1, Anusha Alam2, Hassan Raja2
1Department of Paediatrics and Child Health, The Aga Khan University Hospital, Karachi, Pakistan.
Insights
Neuro-developmental disabilities pose a significant challenge in Pakistan. This study found Autism Spectrum Disorder (ASD) to be the most common diagnosis among referred children, indicating an increasing trend.
Area of Science:
- Child Development
- Neuroscience
- Public Health
Background:
- Neuro-developmental disabilities present a significant challenge in Low Middle-Income Countries (LMICs).
- Understanding referral patterns is crucial for resource allocation and intervention strategies in child development centers.
Purpose of the Study:
- To analyze the referral profile and trends of neuro-developmental disabilities.
- To identify the most common diagnoses and demographic patterns in a Pakistani child development center.
Main Methods:
- Retrospective analysis of 1340 children (1 month to 18 years) evaluated between 2012 and 2021.
- Data collection included diagnostic evaluations for suspected neuro-developmental disabilities.
Main Results:
- The mean age at presentation was 5.4 ± 3.0 years, with a male to female ratio of 3:1.
- Autism Spectrum Disorder (ASD) was the most frequent diagnosis, accounting for 33.3% (n=446) of cases.
- A considerable burden and an increasing trend of referrals for developmental disabilities were observed.
Conclusions:
- There is a substantial and growing burden of neuro-developmental disabilities in Pakistan.
- ASD is a primary concern, necessitating targeted interventions and further research.
- The findings underscore the need for enhanced diagnostic and support services for children with developmental disabilities in LMICs.
Abstract:
The burden and the spectrum of neuro-developmental disabilities are well-established in the developed countries, however, they continue to be a challenge in the Low Middle-Income Countries. The aim of this study was to present the referral profile and trends of developmental disabilities in the child development centre of The Agha khan University, from 2012 to 2021. All children (1 month to 18 years), who had undergone diagnostic evaluations for suspected neurodevelopmental disabilities were included. A total of 1340 children were evaluated at the centre. The mean age of the children at the presentation was 5.4 ± 3.0 years. Male to female ratio was 3:1. Autism Spectrum Disorder (ASD) was the most common diagnosis (n=446, 33.3%). This study highlights a considerable burden and an increasing trend of children being referred for suspected developmental disabilities in Pakistan. Key Words: Developmental disabilities, Referral, Pakistan, Autism spectrum disorder.
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