Patient and family contributions to improve the diagnostic process through the OurDX electronic health record tool: a mixed method analysis
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View abstract on PubMed
Summary
This summary is machine-generated.Patient and family input via the Our Diagnosis (OurDX) tool enhances diagnostic safety. OurDX captures unique patient insights on diagnostic process risks, improving clinician understanding and care.
Area Of Science
- Health Services Research
- Patient Safety
- Digital Health
Background
- Accurate diagnosis requires shared perspectives and minimizing information asymmetry between clinicians and patients/families.
- Patients/families possess unique diagnostic process (DxP) information, including potential diagnostic safety blind spots invisible to clinicians.
- The online tool 'Our Diagnosis (OurDX)' was co-developed with patients/families to improve information sharing.
Purpose Of The Study
- To characterize patient/family contributions within the OurDX tool.
- To identify differences in contributions between individuals with and without diagnostic concerns.
Main Methods
- OurDX was implemented in academic organizations across subspecialty and primary care clinics.
- Patients/families contributed visit priorities, histories, and diagnostic concerns prior to visits.
- Qualitative analysis assessed patient/family contributions in sampled OurDX reports.
Main Results
- High report submission rates were observed in both pediatric subspecialty and adult primary care settings.
- Participants commonly contributed information on clinical symptoms/history, tests/referrals, and diagnosis/next steps.
- Individuals with diagnostic concerns more frequently reported on access barriers, care coordination issues, and communication breakdowns, highlighting potential diagnostic blind spots.
Conclusions
- The OurDX tool facilitates clinician access to a broader DxP perspective.
- Partnering with patients/families through OurDX can enhance diagnostic safety by incorporating unique insights.
- This approach supports the co-production of safer diagnostic processes in chronic condition management.
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