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[REIN: a tool to support scientific research].
Noémie Jourde-Chiche1, Clémence Béchade2, Cécile Couchoud3
1Aix-Marseille Université, C2VN, INSERM, INRAE, AP-HM Centre de Néphrologie et Transplantation Rénale, Marseille, France
Nephrologie & Therapeutique
|August 28, 2023
Summary
The French Renal Epidemiology and Information Network (REIN) registry has become a vital research infrastructure, supporting studies on kidney diseases and patient care. Its data linkage enhances understanding of treatments and hospitalizations for end-stage kidney disease (ESKD).
Area of Science:
- Nephrology
- Epidemiology
- Public Health
Background:
- The French Renal Epidemiology and Information Network (REIN) registry celebrates 20 years.
- A review of its contributions to research was conducted.
Purpose of the Study:
- To summarize the REIN registry's impact as a shared research infrastructure.
- To highlight its role in advancing kidney disease research and public health.
Main Methods:
- Analysis of publications, dissertations, theses, and involved research teams.
- Integration and analysis of REIN data with the National Healthcare Data System.
Main Results:
- REIN has successfully fostered a collaborative research environment.
- It serves as a valuable tool for studying specific and rare kidney diseases, including those leading to end-stage kidney disease (ESKD).
- Data linkage allows comprehensive analysis of patient medical treatments and hospitalizations.
Conclusions:
- The REIN registry has achieved its goal of becoming a crucial shared research infrastructure.
- It significantly contributes to epidemiological, public health, health economics, and medical data processing research in nephrology.
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