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[The information system of REIN]
Geneviève Bernède1, Joseph Saïd1, Antonio Sequeira1
1Coordination nationale REIN, Agence de la biomédecine, Saint-Denis-La Plaine, France
Nephrologie & Therapeutique
|August 28, 2023
Summary
The French Renal Epidemiology and Information Network (REIN) information system supports its national End-Stage Kidney Disease (ESKD) register. Key features include secure data collection tools for dialysis and transplantation, quality controls, and reporting capabilities.
Area of Science:
- Nephrology
- Epidemiology
- Health Informatics
Background:
- The French Renal Epidemiology and Information Network (REIN) is celebrating its 20th anniversary.
- A review of the national French ESKD register's contributions was conducted.
- Focus was placed on the evolution and capabilities of the REIN information system.
Purpose of the Study:
- To summarize the contributions of the French national ESKD register.
- To highlight the key features and advancements of the REIN information system over 20 years.
- To underscore the system's role in managing renal data.
Main Methods:
- The study involved a retrospective analysis of the REIN information system's development.
- Key messages regarding the information system were identified and retained.
- The system's lifecycle support for register data was examined.
Main Results:
- The REIN information system effectively manages data throughout its lifecycle.
- Secure web-based tools are available for collecting dialysis and transplantation data.
- Enhanced data quality control measures and reporting tools, including a geographic information system, have been implemented.
Conclusions:
- The REIN information system is a robust platform supporting the French national ESKD register.
- Continuous improvements in data collection, quality control, and reporting enhance the system's utility.
- The system plays a vital role in renal epidemiology and information network management.
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