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The multiple sclerosis self-concept change scale: Development and validation of a new measure
Holly Emery1, Ingrid van der Mei2, Christine Padgett3
1School of Psychological Sciences, University of Tasmania, Launceston, Australia.
Multiple Sclerosis and Related Disorders
|August 28, 2023
Summary
The new Multiple Sclerosis Self-Concept Change Scale (MSSCCS) reliably measures how self-concept changes in people with MS. This validated tool aids understanding of psychological wellbeing and functioning in this population.
Area of Science:
- Psychology
- Neuroscience
- Health Sciences
Background:
- Self-concept changes can affect psychological wellbeing in people with MS (pwMS).
- Understanding the nature and extent of self-concept change in pwMS is limited due to a lack of quantitative measures.
- Existing research highlights the need for validated instruments to assess self-concept dynamics in MS.
Purpose of the Study:
- To evaluate the psychometric properties of the newly developed Multiple Sclerosis Self-Concept Change Scale (MSSCCS).
- To establish the factor structure, validity, and internal consistency of the MSSCCS.
- To provide a quantitative tool for assessing self-concept alterations in individuals with MS.
Main Methods:
- Item generation and expert review followed by pre-testing in 135 pwMS.
- A 51-item scale was administered to 1307 pwMS, alongside measures of disease impact and psychosocial functioning.
- Exploratory and confirmatory factor analyses were employed to determine the scale's structure and validity.
Main Results:
- Exploratory factor analysis identified a 23-item, 5-factor structure for the MSSCCS.
- Confirmatory factor analysis supported the 5-factor model and a second-order 'global change' model.
- The MSSCCS demonstrated good internal consistency (α = 0.89) and evidence of concurrent and construct validity.
Conclusions:
- The MSSCCS is a psychometrically sound instrument for assessing self-concept change in pwMS.
- This scale offers a reliable and valid method to enhance the understanding of self-concept dynamics in multiple sclerosis.
- The MSSCCS can be a valuable tool for researchers and clinicians studying psychosocial aspects of MS.
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