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Toward Equity in Research on Intellectual and Developmental Disabilities.

Sara T Kover¹, Leonard Abbeduto²

¹Sara T. Kover, University of Washington.

American Journal on Intellectual and Developmental Disabilities

|August 30, 2023

Summary

Intellectual and developmental disability (IDD) research needs more than just diverse samples and researchers. It requires a paradigm shift to value multiple identities and include communities as partners to reduce social inequities.

Keywords:

advocacy bias bilingualism disability justice diversity interprofessional education intersectionality models of disability race self-representation

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Area of Science:

Social Sciences
Disability Studies
Health Equity

Background:

Intellectual and developmental disability (IDD) research often lacks diversity, focusing narrowly on sample demographics and researcher backgrounds.
The field is criticized for over-relying on dominant cultural perspectives, which can perpetuate social inequities.
Existing research models may not adequately address the multifaceted nature of disability and identity.

Purpose of the Study:

To propose a new framework for IDD research that addresses systemic diversity issues.
To shift research paradigms from deficit-based to person-centered approaches.
To promote the inclusion of self-advocates and diverse communities as research partners.

Main Methods:

Conceptual framework development.
Analysis of existing IDD research practices and their limitations.
Proposal of a systems-change approach to research implementation.

Main Results:

The proposed framework minimizes reliance on diagnostic categories.
It shifts focus to person-centered models and acknowledges multiple identities.
It advocates for genuine partnership with self-advocates and diverse communities.

Conclusions:

Current IDD research practices reinforce social inequities due to a lack of diverse perspectives.
A paradigm shift is needed to create more equitable and inclusive research.
Implementing this framework requires significant systems change within the research enterprise.