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Measuring Family Members' Satisfaction with End-of-Life Care in Long-Term Care: Adaptation of the CANHELP Lite Questionnaire.

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Developing a compassionate community: a Canadian conceptual model for community capacity development.

Mary Lou Kelley1

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The Developing a Compassionate Community (DCC) model empowers communities to take collective responsibility for aging, dying, caregiving, and grieving. This Canadian framework uses community capacity development for a public health approach to end-of-life care.

Keywords:
First Nationscommunity capacity developmentcompassionate communitiesend-of-life carelong-term care homesparticipatory action researchpractice modelpublic health palliative careruralsocial work competenciestheory of change

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Area of Science:

  • Public Health
  • Community Development
  • Gerontology

Background:

  • Aging, dying, caregiving, and grieving are often viewed as individual or family issues.
  • A gap exists in community-based models that address the holistic needs of aging and end-of-life processes.
  • Existing approaches may not adequately leverage community strengths and resident engagement.

Purpose of the Study:

  • To introduce and describe the Developing a Compassionate Community (DCC) model.
  • To provide a research-informed practice guide for developing compassionate communities.
  • To promote a public health approach to end-of-life care within communities.

Main Methods:

  • The DCC model is based on 30 years of Canadian research across diverse community settings.
  • It utilizes principles of community capacity development, focusing on citizen empowerment and asset-based approaches.
  • The strategy involves engaging, empowering, and educating community members to mobilize networks for mutual support.

Main Results:

  • The DCC model offers a practical theory and tool for community-led change.
  • It fosters a shift from problem-focused discussions to solution-oriented actions.
  • The model encourages the mobilization of social networks to prepare for and support individuals through aging and end-of-life transitions.

Conclusions:

  • The DCC model provides a framework for communities to collectively manage aging, dying, caregiving, and grieving.
  • It supports a public health approach to end-of-life care, emphasizing community responsibility and capacity building.
  • The model is adaptable and can be evaluated for application in various contexts, including beyond Canada.