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Integrating community voices in the research continuum: Perspectives on a consultation service
Crystal D Evans1,2, Joy P Nanda2, Pamela Ouyang1,2,3
1Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
Abstract:
The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016-2017, C-RAC members and researchers were surveyed on their consultation experiences. Survey results and a 2019 stakeholder meeting proceeding helped redesign the consultation services. Transitioning to virtual consultations during COVID-19, the redesigning involved increasing visibility, providing consultation materials in advance, expanding member training, and effective communications. An increase in consultations from 28 (2009-2017) to 114 (2020-2022) was observed. Implementing stakeholder-researcher inputs is critical to holistic and sustained community-engaged research.
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