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Related Experiment Video

Updated: Jul 16, 2025

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
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Using co-creation focus groups to customise a remote multidomain programme designed to increase dementia literacy.

Walter Wittich1, Edeltraut Kröger2, Gabrielle Aubin3

  • 1School of Optometry, Universite de Montreal, Montreal, Québec, Canada walter.wittich@umontreal.ca.

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Summary

This study adapted the Brain Health PRO program for Quebec, Canada, using co-creation focus groups to improve dementia literacy resources for users and providers.

Keywords:
agingdementiahealth educationpatient participationprimary preventionqualitative research

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Area of Science:

  • Public Health Research
  • Gerontology
  • Health Informatics

Background:

  • Web-based multidomain programs can enhance dementia literacy.
  • Adapting digital health tools is crucial for diverse populations.
  • Community engagement is key for effective health interventions.

Purpose of the Study:

  • To tailor the Brain Health PRO program for users, providers, and organizations in Quebec, Canada.
  • To enhance dementia literacy through a user-centered web-based intervention.
  • To address the specific needs and context of the Quebec population.

Main Methods:

  • Conducted five qualitative co-creation focus group sessions.
  • Explored barriers and facilitators to usability, accessibility, and comprehensibility.
  • Utilized qualitative description and thematic analysis of session recordings.

Main Results:

  • Synthesized recommendations for diversity, material complexity, and presentation.
  • Influenced refinements to the web interface, measurement approaches, and recruitment strategies.
  • Informed participant retention efforts and content engagement for Brain Health PRO.

Conclusions:

  • Co-creation in dementia prevention research ensures relevance and meaningfulness.
  • Collaboration with diverse stakeholders enhances understanding of user needs.
  • This approach improves the design and implementation of clinical studies for dementia literacy.