Consensus-Based Development of a Global Registry for Traumatic Brain Injury: Establishment, Protocol, and...

Area of Science:

• Neurosurgery
• Public Health
• Epidemiology

Background:

• Global disparities exist in traumatic brain injury (TBI) demographics, pathology, management, and outcomes.
• Understanding the factors driving these differences, including intervention effectiveness, remains unclear.
• Accurate global data on TBI burden is challenging due to the need for systematic, ongoing data collection across all management types.

Purpose of the Study:

• To establish a global registry for traumatic brain injury (TBI).
• To enable local service benchmarking against a global standard.
• To identify unmet needs in TBI management and inform evidence-based policymaking.

Main Methods:

• Iterative, consensus-based development by neurotrauma professionals.
• International multidisciplinary meetings to define registry objectives, structure, and data points.
• Global survey circulated to neurotrauma community, followed by a consensus meeting on key variables.

Main Results:

• 156 professionals from 53 countries participated in the survey.
• The Global Epidemiology and Outcomes following Traumatic Brain Injury (GEO-TBI) registry was established.
• The registry includes data on demographics, injury characteristics, imaging, treatments, and short-term outcomes for neurosurgically managed TBI patients.

Conclusions:

• The GEO-TBI registry facilitates high-quality data collection, clinical auditing, and research.
• Supported by the World Federation of Neurosurgical Societies and the National Institute of Health Research Global Health Program.
• The registry is open for participant site recruitment to foster global collaboration in TBI management.