Experiences of parents whose school-aged children were treated with therapeutic hypothermia as newborns: A focus

Sari Kokkonen Nassef1, Mats Blennow Bohlin1,2, Maria Jirwe3,4

  • 1Department of Clinical Science, Intervention and Technology, Division of Paediatrics, Karolinska Institutet, Stockholm, Sweden.

Nursing Open
|September 27, 2023
PubMed

Insights

Parents experienced long-lasting psychological effects from therapeutic hypothermia (TH) for their newborns after perinatal asphyxia. Improved communication and support are crucial for families undergoing TH treatment.

Area of Science:

  • Neonatal care
  • Developmental pediatrics
  • Psychological impact of medical treatment

Background:

  • Therapeutic hypothermia (TH) is a standard treatment for newborns with perinatal asphyxia to improve neurodevelopmental outcomes.
  • Understanding the long-term parental experience of TH is essential for comprehensive care.

Purpose of the Study:

  • To describe parents' long-term experiences (10-13 years post-treatment) with therapeutic hypothermia for their newborn infants following perinatal asphyxia.
  • To identify the lasting psychological and daily life challenges faced by parents.

Main Methods:

  • Qualitative descriptive study utilizing focus groups (FGs) with parents.
  • Fifteen parents of infants treated with TH between 2007-2009 participated in five FGs.
  • Verbatim FG transcripts were analyzed using a framework approach, adhering to SRQR guidelines.

Main Results:

  • Parents reported significant psychological hardships and struggles in everyday life, extending years after TH treatment.
  • Key themes included concern and gratitude for treatment, insufficient information, and the ongoing impact of unprocessed experiences.
  • Challenges persisted in school and daily life, highlighting the need for sustained support.

Conclusions:

  • Therapeutic hypothermia profoundly affects parents psychologically, with effects lasting years beyond the initial treatment.
  • Ineffective communication from healthcare professionals and schools contributed to parental distress.
  • Proactive identification of infant and family needs before discharge is vital to prevent long-term concerns.
Abstract

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