The Impact of COVID-19 on Multidisciplinary Care Delivery to Children with Cerebral Palsy and Other Neuromuscular

Hillary Brenda Nguyen1,2, Neha Mulpuri3, Danielle Cook2

  • 1Harvard Medical School, Boston, MA 02115, USA.

PubMed

Insights

The COVID-19 pandemic disrupted care for children with cerebral palsy (CP) and neuromuscular complex chronic conditions (NCCCs), significantly reducing in-person visits and procedures. Telemedicine use surged, becoming crucial for managing these patients.

Area of Science:

  • Pediatric Healthcare
  • Neurology
  • Public Health

Background:

  • The COVID-19 pandemic presented significant challenges to healthcare systems globally.
  • Children with cerebral palsy (CP) and other neuromuscular complex chronic conditions (NCCCs) require specialized, ongoing care.
  • Disruptions in care can negatively impact patient outcomes.

Purpose of the Study:

  • To investigate the direct impact of the COVID-19 pandemic on healthcare delivery for children with CP and NCCCs.
  • To compare healthcare practices for these patients before and during the pandemic.
  • To identify challenges and adaptations in managing NCCC patients during a public health crisis.

Main Methods:

  • A cross-sectional survey was administered to medical professionals caring for CP and NCCC patients.
  • The survey collected data from May to August 2020 across multiple countries and disciplines.
  • Participants compared healthcare delivery practices before and during the COVID-19 pandemic.

Main Results:

  • Most healthcare workers (79 from 8 countries) reported difficulties in caring for NCCC patients during the pandemic.
  • Significant decreases were observed in in-person NCCC clinic volume, multidisciplinary appointments, surgical cases, and injections (p < 0.001).
  • Telemedicine usage for NCCC patient visits increased significantly (p < 0.001), with modified institutional guidelines for procedures and settings.

Conclusions:

  • The COVID-19 pandemic led to a loss of routine, multidisciplinary care access for many children with NCCCs.
  • Telemedicine emerged as an integral tool for communication and management.
  • These findings provide a basis for understanding evolving healthcare delivery and developing best practices for future disruptions.

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