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Transitioning young adults with spina bifida: Challenges and paths to success

Joshua D Roth1, Matthew A Miller2, Joseph O O'Neil2

  • 1Department of Urology, Riley Hospital for Children, Indiana University School of Medicine, United States.

Journal of Pediatric Urology
|October 3, 2023
PubMed

Insights

Advances in spina bifida (SB) care allow more adults to live longer, necessitating a transition to adult care models. This transition presents unique challenges in neurocognitive function, sexual health, and neurogenic bladder management for adults with SB.

Area of Science:

  • Medical advancements and lifelong care for individuals with spina bifida.

Background:

  • Medical progress has enabled individuals with spina bifida (SB) to live into adulthood.
  • This demographic shift necessitates a transition from pediatric to adult healthcare models.

Purpose of the Study:

  • To explore the challenges associated with transitioning SB care to adult models.
  • To investigate emerging issues in sexual function and dysfunction during transition.
  • To address difficulties in managing neurogenic bladder and urologic sequelae in adults with SB.

Main Methods:

  • Literature review summarizing challenges in SB care transition.
  • Expert summaries highlighting challenges in specific areas of SB management.

Main Results:

  • Transitioning SB care is complicated by neurocognitive and neuropsychological issues.
  • Sexual function is a critical aspect of transition that requires attention.
  • Managing neurogenic bladder in adults with SB is complex due to population heterogeneity and prior surgical outcomes.

Conclusions:

  • Ensuring appropriate, evidence-based lifelong care for all individuals with SB is paramount.
  • Addressing neurocognitive deficits, sexual health, and urologic management are key to successful SB care transition.
Abstract

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