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A life-changing process when living with chronic kidney disease: A qualitative study
Christina E Frandsen1,2,3,4, Hans Dieperink1,2, Bettina Trettin2,5
1Department of Nephrology, Odense University Hospital, Odense, Denmark.
Journal of Renal Care
|October 4, 2023
Summary
Chronic kidney disease (CKD) significantly alters family dynamics and daily life, impacting roles and identity. Patients and families navigate treatment choices amidst emotional challenges and a desire for normalcy.
Area of Science:
- Nephrology
- Sociology
- Psychology
Background:
- Chronic kidney disease (CKD) necessitates significant lifestyle adjustments for patients and their families.
- Advance care planning (ACP) is crucial for understanding health status, care options, and personal preferences.
Purpose of the Study:
- To explore the lived experiences of CKD patients and their families regarding daily life.
- To understand how CKD patients and families experience making treatment choices.
Main Methods:
- Qualitative, explorative study utilizing a phenomenological-hermeneutic approach.
- Individual semistructured interviews with 12 CKD patients and 8 family members.
- Data analysis based on Ricoeur's interpretation theory.
Main Results:
- A central theme identified was 'Family dynamics in a life-changing process'.
- Subthemes included 'Living in an ordinary life placed in a waiting position,' 'The dilemma of readiness to share,' and 'Feelings of being left alone.'
Conclusions:
- CKD impacts family roles, identity, and the desire to maintain normalcy.
- Divergent management of CKD within families can lead to sadness, frustration, and loss of resilience.
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