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Updated: Jul 15, 2025

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Published on: August 5, 2020
Is there a role for citizen science in death and dying research?
Clare Wilkinson1, Alison Llewellyn2,3, Candy McCabe2,3
1Science Communication Unit, College of Health, Science and Society, University of the West of England, Bristol, United Kingdom.
Abstract:
The COVID-19 pandemic has brought conversations about death and dying to the fore in a way not experienced for generations. This raises questions around perceptions of death and dying; the role of healthcare and the community in care; and the use of digital media for information and support. Public engagement can provoke a two-way conversation between researchers and the public and includes techniques that can engage the community not only with the topic but also in research. This perspective article considers the potential role of citizen science in death and dying research, including considerations around its potential benefits and constraints.
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