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Burn data management and usage across Canada
Eduardo Gus1, Jane Zhu2, Thrmiga Sathiyamoorthy2
1Division of Plastic, Reconstructive & Aesthetic Surgery, The Hospital for Sick Children, 555 University Avenue, Room 5408, Toronto, Ontario M5G 1X8, Canada; Department of Surgery, Temerty Faculty of Medicine, University of Toronto, 149 College Street, 5th floor, Toronto, Ontario M5T 1P5, Canada.
Canadian burn centers collect clinical data, but analysis and benchmarking are lacking. Most centers are interested in a national burn registry to improve care quality and research outcomes.
Area of Science:
- Burn care research
- Clinical data management
- Health informatics
Background:
- Burn clinical data collection varies globally, with some nations utilizing registries for outcome benchmarking.
- Canada's current approach to burn data collection requires characterization to identify potential improvements.
Purpose of the Study:
- To assess the current state of burn clinical data collection and analysis in Canadian burn centers.
- To gauge Canadian burn centers' interest in participating in a national burn registry.
Main Methods:
- A 23-item mixed-methods survey was distributed to 22 Canadian burn center directors.
- Quantitative survey data were analyzed using descriptive statistics; qualitative data underwent thematic analysis.
Main Results:
- 16 (72%) burn centers responded, all collecting burn clinical data primarily for quality improvement and research.
- Analysis and benchmarking of collected data are infrequent, with 50% not analyzing and 67% not benchmarking.
- A significant majority (93%) expressed interest in contributing to a Canada-wide burn registry.
Conclusions:
- While Canadian burn centers collect clinical data, opportunities exist to enhance data analysis, benchmarking, and knowledge translation.
- There is strong support among Canadian burn centers for establishing a national registry to advance burn care and research.
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