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Developing and testing a protocol using a common data model for federated collection and analysis of national

Jennifer Zeitlin1, Marianne Philibert1, Francisco Estupiñán-Romero2

  • 1Université Paris Cité, INRAE, Centre for Research in Epidemiology and StatisticS (CRESS), Obstetrical, Perinatal and Pediatric Epidemiology Research Team, EPOPé, INSERM, Paris, 75004, France.

Open Research Europe
|October 13, 2023
PubMed

Insights

This study developed an open-source protocol for comparing European perinatal health data. The protocol enables rapid analysis of maternal and infant health indicators, improving national data systems.

Area of Science:

  • Public Health
  • Health Informatics
  • Epidemiology

Background:

  • International comparisons of maternal and infant health are crucial for policy but lack standardized data.
  • Health emergencies, like COVID-19, highlight the need for comparable population health data.
  • The Population Health Information Research Infrastructure (PHIRI) project addresses data exchange challenges in Europe.

Purpose of the Study:

  • To develop and validate a protocol for the federated analysis of European population birth data.
  • To establish a framework for consistent and comparable perinatal health indicator reporting across European countries.
  • To support health policy and practice through reliable international health benchmarks.

Main Methods:

  • The Euro-Peristat network developed a Common Data Model (CDM) and R scripts for data exchange and analysis.
  • A consensus process defined variables and common outputs for perinatal indicators.
  • The protocol was tested on routine birth data (2015-2020) from 28 countries and four UK nations.

Main Results:

  • The Common Data Model (CDM) included 17 core data items for testing, with plans for 18 in an expanded phase.
  • 28 countries successfully created databases and ran R scripts to generate anonymous aggregate tables.
  • Data completeness varied, with infant death and mode of birth most frequently missing; setup time ranged from days to weeks.

Conclusions:

  • The open-source protocol facilitates rapid production and analysis of perinatal health indicators.
  • It provides a roadmap for a sustainable European information system and sets minimum standards for national data improvement.
  • The protocol can be adopted globally to enhance international comparisons of perinatal health indicators.

Keywords:
Birth datacaesarean deliveryfederated analysismaternalnational statisticsnewbornperinatalpopulation health indicators

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