Spinal Cord Stimulation and Related Health Information on Social Media: An Analysis of Instagram Posts

Spinal cord stimulation (SCS) has been a well-established, effective, minimally invasive procedure for the treatment of chronic medically refractory neuropathic pain involving the limbs and trunk. Social media platforms, including Instagram, are increasingly being used for medical education and sharing patient experiences. This study aimed to investigate posts related to SCS on Instagram.

This study presents a comprehensive analysis of Instagram posts utilizing the hashtags #spinalcordneuromodulation, #spinalcordstimulation, #spinalcordstimulationsurgery, #spinalcordstimulationtherapy, and #spinalcordstimulationimplant, all of which were collected on August 1, 2023. The outcomes were organized into four distinct source-based categories: posts generated by medical practitioners (both surgeons and non-surgeons); content shared by medical organizations; content created by patients; and content from indeterminate categories. The content was further classified based on its nature, encompassing educational material and reflections on patient or physician experiences. Moreover, the impact of users was evaluated in terms of their follower count and the count of posts.

The search yielded a total of 4983 posts. The majority of posts were created by medical practitioners (38.53%, n = 1920). The distribution of remaining Instagram posts about SCS was as follows: medical organizations for 35% (n = 1744), patients for 24.12% (n = 1202), and indeterminate categories for 2.35% (n = 117). Among the collected posts, 348 (41.4%) originated from accounts associated with medical practitioners, 286 (34%) from medical organizations, 145 (17.2%) from patients, and 62 (7.4%) remained unspecified. The statistical analysis revealed a significant difference in follower distribution between medical practitioners and all other groups (p<0.001). Reported side effects included pain over the implant (n = 257; 88.92%), lead migration (n = 18; 6.22%), infection (n = 9; 3; 11%), and seroma (n = 5; 1.73%).

When searching for posts about SCS on Instagram, one is more likely to encounter posts authored by medical practitioners that are mostly focused on educational content. Posts created by medical practitioners may be overshadowed and buried among numerous other posts created by patients. We suggest posting educational medical content with the hashtag #MedEd in an attempt to make educational content more easily accessible.