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Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform
Published on: April 12, 2021
Holistic care and symptom management for pediatric kidney transplant recipients
Taylor R House1, Stephen D Marks2,3, Michael A Freeman4
1Division of Nephrology, Department of Pediatrics, School of Medicine and Public Health, University of Wisconsin Madison, Madison, WI, 53792, USA.
Insights
Pediatric kidney transplant recipients face new challenges, including symptoms like fatigue and anxiety, impacting their quality of life. Holistic symptom management by transplant teams is crucial for improving patient outcomes.
Area of Science:
- Pediatric Nephrology
- Transplant Medicine
- Psychology
Background:
- Kidney transplantation offers significant life improvements for children and young people.
- Post-transplant life presents new challenges, including symptoms impacting health-related quality of life.
Purpose of the Study:
- To highlight common symptoms experienced by pediatric kidney transplant recipients.
- To emphasize the need for a holistic, patient-centered approach to symptom management.
Main Methods:
- Literature review on symptom prevalence in pediatric kidney transplant patients.
- Analysis of patient and family perspectives on symptom impact.
- Discussion of interdisciplinary team's role in assessment and intervention.
Main Results:
- Common symptoms include fatigue, anxiety, depression, post-traumatic stress, pain, and sleep disturbances.
- Poor body image and sexual health concerns are also prevalent.
- Regular assessment and tailored interventions are necessary.
Conclusions:
- Addressing a wide range of symptoms is vital for pediatric kidney transplant recipients' well-being.
- A holistic, interdisciplinary approach is essential for effective symptom management.
- Transplant status significantly influences care needs and symptom presentation.
Abstract:
While many aspects of life may improve substantially for children and young people undergoing kidney transplant, there may be new challenges including symptoms that can be detrimental to health-related quality of life. Addressing symptoms requires attention to patient and family perspectives and a holistic approach grounded in symptom management. The interdisciplinary pediatric nephrology transplant team should be attuned to the prevalence of common symptoms including fatigue, anxiety, depression, post-traumatic stress, pain, and sleep disturbances, as well as poor body image and sexual health. These common symptoms require regular assessment with a focus on appropriate interventions and how care may be impacted by transplant status.
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