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Emergency and Disaster Preparedness for Individuals Who Use Augmentative and Alternative Communication: A Pilot Study
Andrea Barton-Hulsey1, Miriam C Boesch2, Yoosun Chung3
1School of Communication Science and Disorders, Florida State University, Tallahassee.
Individuals using augmentative and alternative communication (AAC) need personalized emergency plans. This study shows person-centered planning improves preparedness for those with communication needs during disasters.
Area of Science:
- Augmentative and Alternative Communication (AAC)
- Emergency Preparedness
- Disaster Response
Background:
- Individuals using AAC are particularly vulnerable during emergencies.
- Effective communication and decision-making support are critical for their safety.
- Existing preparedness efforts often overlook specific communication needs.
Purpose of the Study:
- To explore the experiences of young adults using AAC and their caregivers during person-centered planning for emergency preparedness.
- To assess the feasibility and impact of a structured intervention using the USSAAC emergency preparedness toolkit.
- To identify themes related to preparedness, barriers, and planning actions.
Main Methods:
- Qualitative study involving two young adults who use AAC and their caregivers.
- Utilized pre-intervention interviews and SOAP notes from 14 intervention sessions.
- Employed thematic analysis to identify key experiences and changes in preparedness.
Main Results:
- Five major themes and 18 subthemes emerged from the data.
- Identified participant awareness of needs, barriers, and challenges in emergency situations.
- Documented actions taken during planning, such as creating communication boards and coordinating with local agencies.
Conclusions:
- Person-centered preparedness activities are essential for individuals using AAC.
- The intervention demonstrated feasibility and positively impacted perceived preparedness for participants and caregivers.
- Highlights the need to integrate communication support into all disaster planning.
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