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The experiences, needs and expectations of patients regarding participation at home: an explorative study in Belgium
Kristien Scheepmans1,2, Sibyl Anthierens3, Uschi De Coster1
1Lead Author, White-Yellow Cross, Belgium.
Background:
Patients have an important role in the improvement of their health. Patient participation is a key component to achieving this. Some form of patient participation is already present in home care, but this needs to be optimised.
Aim:
Gaining insight into the expectations, experiences and needs of patients regarding patient participation in home care.
Design:
A qualitative design was used.
Setting:
The study was conducted in the Flemish part of Belgium, in a purposeful sample of patients who have already received nursing care at home for at least 6 weeks.
Methods:
Semi-structured face-to-face in-depth interviews were conducted and analysed using the Qualitative Analyse Guide of Leuven.
Results:
Patient participation in home care is a dynamic process. A total of six components, which interact with each other, were identified that explain this process.
Conclusion:
Patient participation in home care is the interaction of different components of a whole mechanism. Within this mechanism, home nurses play a key role to facilitate participation for patients.
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