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07:27
Exergaming in Older People Living with HIV Improves Balance, Mobility and Ameliorates Some Aspects of Frailty
Published on: October 6, 2016
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Using Community-Based Participatory Research to Develop Care Recommendations for People Aging With HIV
Maria T Brown1, John Wikiera2, Marz Albarran3
1School of Social Work, Syracuse University, Syracuse, New York, USA.
Innovation in Aging
|November 9, 2023
Summary
This study identified the practical needs of long-term survivors and older adults with HIV in New York State. Community-based participatory research led to actionable recommendations for improving care and support services.
Area of Science:
- Gerontology
- Public Health
- Infectious Diseases
Background:
- Over 50% of New Yorkers with HIV are aged 50+, facing significant long-term survivor consequences.
- Identifying practical needs is crucial for improving care for this growing demographic.
Purpose of the Study:
- To identify the practical needs of long-term survivors and older adults with HIV (consumers) in New York State.
- To develop actionable recommendations for enhancing care and support services.
Main Methods:
- Community-based participatory research (CBPR) guided a statewide survey.
- Survey included consumers, clinicians, and service providers, collecting data on barriers and recommendations.
- Responses were analyzed using descriptive statistics.
Main Results:
- 124 consumers, 20 clinicians, and 24 service providers participated.
- Key concerns included clinical care coordination, housing, mental health cultural representation, and financial support.
- Most consumers were long-term survivors and older adults with HIV, diagnosed an average of 27 years prior.
Conclusions:
- CBPR effectively generated consumer-driven recommendations for improving HIV care.
- Town hall formats enhanced survey design and focused on consumer priorities.
- A quality initiative was launched for routine screening of functional decline in long-term HIV survivors.
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