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Implementing paediatric patient-reported outcome measures in outpatient asthma clinics: a feasibility assessment
Sumedh Bele1, Elizabeth Oddone Paolucci2,3, David W Johnson4,5
1Department of Medicine, University of Calgary, Calgary, Alberta, Canada sumedh.bele@ucalgary.ca.
Insights
The KidsPRO programme makes implementing patient-reported outcome measures (PROMs) feasible in paediatric asthma clinics. This study found positive experiences among patients and caregivers, suggesting successful integration of PROMs into routine care.
Area of Science:
- Paediatric healthcare research
- Clinical informatics
- Health outcomes research
Background:
- Patient-reported outcome measures (PROMs) are underutilized in routine paediatric clinical care.
- The KidsPRO programme was developed to address this gap by facilitating PROM implementation.
- This study focused on the feasibility of using the Pediatric Quality of Life Inventory (PedsQL) PROM within asthma clinics.
Purpose of the Study:
- To describe the development of the innovative KidsPRO programme.
- To assess the feasibility of implementing the PedsQL PROM in paediatric asthma clinics using KidsPRO.
- To evaluate participant understanding, support, utility, and satisfaction with PROMs.
Main Methods:
- A feasibility assessment study was conducted in outpatient paediatric asthma clinics in Calgary, Canada.
- Five patients, four family caregivers, and three healthcare providers piloted the PedsQL PROM via KidsPRO.
- Quantitative and qualitative data were collected through surveys and analyzed using bar charts and content analysis.
Main Results:
- Patients and family caregivers reported overwhelmingly positive experiences using PROMs.
- Healthcare provider experiences were mixed.
- Qualitative data corroborated the quantitative findings, indicating overall feasibility.
Conclusions:
- The implementation of PROMs in routine paediatric clinical care asthma clinics in Alberta appears feasible.
- The KidsPRO programme shows promise for integrating PROMs into paediatric healthcare settings.
- Further research may be warranted to optimize PROM use among healthcare providers.
Objective:
Implementation of patient-reported outcome measures (PROMs) is limited in paediatric routine clinical care. The KidsPRO programme has been codesigned to facilitate the implementation of PROMs in paediatric healthcare settings. Therefore, this study (1) describes the development of innovative KidsPRO programme and (2) reports on the feasibility of implementing PedsQL (Pediatric Quality of Life Inventory) PROM in asthma clinics using the KidsPRO programme.
Design:
Feasibility assessment study.
Setting:
Outpatient paediatric asthma clinics in the city of Calgary, Canada.
Participants:
Five paediatric patients, four family caregivers and three healthcare providers were recruited to pilot the implementation of PedsQL PROM using KidsPRO. Then, a survey was used to assess its feasibility among these study participants.
Main Outcome Measures:
Participants' understanding of using PROMs, the adequacy of support provided to them, the utility of using PROMs as part of their appointment, and their satisfaction with using PROMs.
Analyses:
The quantitative data generated through closed-ended questions was analysed and represented in the form of bar charts for each category of study participants (ie, patients, their family caregivers and healthcare providers). The qualitative data generated through the open-ended questions were content analysed and categorised into themes.
Results:
The experience of using PROMs was overwhelmingly positive among patients and their family caregivers, results were mixed among healthcare providers. Qualitative data collected through open-ended questions also complemented the quantitative findings.
Conclusion:
The evidence from this study reveals that the implementation of PROMs in routine paediatric clinical care asthma clinics in Alberta is seems to be feasible.
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