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Self-management challenges and support needs among patients with primary glaucoma: a qualitative study
Yiting Hua1, Hujie Lu1, Jingyao Dai1
1School of Ophthalmology and Optometry, Wenzhou Medical University, 270 West Xueyuan Road, Wenzhou, Zhejiang, 325027, China.
BMC Nursing
|November 14, 2023
Summary
Patients with primary glaucoma face challenges in managing their condition, needing support in health information, social, psychological, and daily living aspects. Tailored interventions enhance self-management and quality of life.
Area of Science:
- Ophthalmology
- Patient Self-Management
- Health Psychology
Background:
- Self-management is crucial for glaucoma patients.
- Current research lacks systematic assessment of glaucoma self-management support needs and challenges.
- Understanding patient perspectives is key to improving self-management programs.
Purpose of the Study:
- To investigate the self-management challenges faced by primary glaucoma patients.
- To identify the specific support needs of these patients.
- To provide a foundation for nursing staff to implement effective self-management support.
Main Methods:
- Phenomenological method utilizing semistructured interviews.
- Recruitment of 20 primary glaucoma patients between June and December 2022.
- Colaizzi's analysis method for interview data interpretation.
Main Results:
- Identified patient challenges: becoming a glaucoma expert, managing emotions, adapting daily life, and resuming social activities.
- Four key themes of self-management support needs emerged: health information, social, psychological, and daily living support.
- Findings highlight the multifaceted nature of glaucoma self-management.
Conclusions:
- Primary glaucoma patients encounter significant medical, emotional, and social challenges.
- Healthcare professionals must understand patient support needs for effective interventions.
- Personalized and comprehensive self-management interventions can improve patient capacity and quality of life.
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