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Physicians' Perspectives on HL7 Information Policy Sensitive Value Set: A Validation Study through Health Concept

Maheswari Eluru1, Daniel Hector Mendoza1, Audrey Wong1

  • 1College of Health Solutions, Arizona State University, Phoenix, AZ 85054, USA.

Healthcare (Basel, Switzerland)
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Summary

Physicians refined Health Level 7 (HL7) sensitive data categories for electronic consent, improving patient control over medical records. Further revisions should include patient perspectives and data validation for patient-centric specifications.

Keywords:
HL7 terminologydata protection and privacygranular patient consentinformation sensitive data sharing

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Area of Science:

  • Health Informatics
  • Medical Record Management
  • Patient Consent Technology

Background:

  • The Health Level 7 (HL7) organization developed an Information Sensitivity Policy Value Set with 45 categories.
  • The aim is to enable granular electronic consent for patient control over sensitive medical records.

Purpose of the Study:

  • This study explored physicians' viewpoints on HL7 sensitive data categories for the first time.
  • To revise and validate these categories for improved patient-friendly and inclusive electronic consent.

Main Methods:

  • A two-survey approach was used with twelve physicians.
  • The first survey involved revisions to 21 HL7 categories based on physician feedback.
  • The second survey involved physicians classifying 600 clinical data items using the updated categories, with data analyzed using descriptive measures and heat maps.

Main Results:

  • Physicians suggested 19 new categories and modifications to 25 existing category definitions in the first survey.
  • Two new categories and sixteen revised definitions were incorporated, enhancing patient-friendly and inclusive language.
  • The second survey led to recommendations for additional categories from ten physicians.

Conclusions:

  • Physicians' input is crucial for future revisions of HL7 categories.
  • Validating categories with patient data and incorporating patient perspectives are recommended.
  • Developing patient-centric category specifications is essential for effective electronic consent systems.