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A Swiss digital Delphi study on patient-reported outcomes.
Matthew J Kerry1, Thomas Volken1, Nikola Biller-Andorno2
1Institute of Health Sciences, Zurich University of Applied Sciences, Winterthur, Switzerland.
Swiss Medical Weekly
|November 21, 2023
Summary
A Delphi study established consensus among Swiss experts on a generic Patient-Reported Outcome Measure (PROM) framework, using PROMIS-29. This supports integrating PROMs into the Swiss health system for improved quality measurement.
Area of Science:
- Health Services Research
- Patient-Reported Outcomes
- Digital Health
Background:
- Health-related quality of life (HRQoL) indicators are patient-reported outcomes (PROs).
- Swiss national bodies recognize PRO measures (PROMs) potential but lack a consensus framework.
- A generic PROM framework is needed for the Swiss national health system's value.
Purpose of the Study:
- To generate Swiss expert consensus on a generic PROM framework, measurement domains, and items.
- To determine the role and implementation of PROs in the Swiss healthcare system.
- To identify a validated instrument for practical uptake.
Main Methods:
- A 4-round digital Delphi study involving Swiss PRO stakeholders (n=21).
- Surveys focused on PROM framework, measurement domains, and items.
- Consensus defined as ≥70% agreement.
Main Results:
- Agreement on a tripartite framework (physical, mental, social health).
- Consensus on seven PROMIS-29 measurement domains (80-100% agreement).
- Agreement on all PROMIS-29 items and four consensus statements on PRO implementation.
Conclusions:
- A Delphi method effectively identified needs for PROMs in Switzerland.
- PROMIS-29 emerged as a suitable PROM framework for further validation.
- Expert agreement supports the feasibility of integrating generic PROMs into the Swiss health system.
