How we approach sharing child-caregiver PRO disagreement
Amy S Porter1, Pamela S Hinds2,3, Lori Wiener4
1Division of Supportive and Palliative Care, Mass General for Children, Boston, Massachusetts, USA.
Pediatric Blood & Cancer
|November 27, 2023
Summary
Pediatric cancer patients and caregivers often report symptoms differently. This study provides communication strategies for clinicians to discuss these patient-reported outcome (PRO) differences, improving family support and harmony during treatment.
Area of Science:
- Pediatric Oncology
- Patient-Reported Outcomes
- Family Communication
Background:
- Patient-reported outcomes (PRO) are vital for assessing pediatric cancer patient experiences.
- Discrepancies between child and caregiver reports of symptoms and function are common.
- Clinicians face challenges in communicating these PRO differences to families.
Purpose of the Study:
- To provide strategies and language for discussing PRO disagreements between pediatric cancer patients and their caregivers.
- To support clinicians in managing and communicating symptom and functional status differences.
- To enhance family communication and harmony during pediatric cancer treatment.
Main Methods:
- Review of existing literature on PROs in pediatric oncology.
- Analysis of common sources of disagreement in symptom and functional reporting.
- Development of communication frameworks and sample language for clinicians.
Main Results:
- Child and caregiver perspectives on symptom burden and functional status frequently diverge.
- Open discussion of PRO differences can alleviate clinician concerns and improve family dynamics.
- Effective communication strategies are essential for patient-centered care.
Conclusions:
- Addressing PRO disagreements is crucial for holistic pediatric cancer care.
- Clinicians need practical tools to facilitate sensitive conversations about patient-reported outcomes.
- Improved communication can positively impact the well-being of pediatric cancer patients and their families.
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