Related Experiment Video

Updated: Jul 9, 2025

SECONDs Administration Guidelines: A Fast Tool to Assess Consciousness in Brain-injured Patients
11:05

SECONDs Administration Guidelines: A Fast Tool to Assess Consciousness in Brain-injured Patients

Published on: February 6, 2021

14.8K

Common Data Elements for Disorders of Consciousness: Recommendations from the Working Group in the Pediatric

Varina L Boerwinkle1, Brian Appavu2, Emilio Garzon Cediel3

  • 1Department of Neurology, University of North Carolina in Chapel Hill, Chapel Hill, NC, USA. Varina_Boerwinke@med.unc.edu.

Neurocritical Care
|December 7, 2023
PubMed

Insights

Standardized terminology for pediatric disorders of consciousness (DoC) is crucial for research. This study introduces pediatric-specific common data elements (CDEs) to enable collaborative studies and advance evidenced-based care for children with DoC.

Area of Science:

  • Pediatric Neurology
  • Neurocritical Care
  • Developmental Neuroscience

Background:

  • Lack of standardized terminology hinders comparative research in pediatric disorders of consciousness (DoC).
  • Measuring consciousness in young children presents unique challenges, impeding progress in evidenced-based care.
  • Advancements in clinical exams and biomarkers offer new ways to assess DoC in the developing brain.

Purpose of the Study:

  • To establish consensus-based, pediatric-tailored common data elements (CDEs) for disorders of consciousness (DoC).
  • To facilitate reliable measurement and comparative research in pediatric DoC.
  • To support the development of evidenced-based care for neonates and children with DoC.

Main Methods:

  • Convened an international, interdisciplinary panel of pediatric DoC experts under the Neurocritical Care Society's Curing Coma Campaign.
  • Developed pediatric-tailored common data elements (CDEs) across key research domains.
  • Included working groups on behavioral phenotyping, biospecimens, electrophysiology, family/goals of care, neuroimaging, outcomes, physiology, therapies, and pediatrics.

Main Results:

  • Generated pediatric-focused recommendations for common data elements (CDEs) in DoC research.
  • Disseminated these CDEs for application in studies involving pediatric patients with DoC.
  • Provided a foundational set of standardized terms for pediatric DoC research.

Conclusions:

  • Recommended CDEs facilitate collaborative and successful international research in pediatric coma.
  • These standardized elements are essential for advancing the understanding and treatment of DoC in children.
  • Supports the vision of improved evidenced-based care through shared research terminology.
Abstract

Keywords:
ComaCommon data elementsConsciousnessDisorder of consciousnessNeonatalPediatricStandardization

More Related Videos

Assessment and Communication for People with Disorders of Consciousness07:37

Assessment and Communication for People with Disorders of Consciousness

Published on: August 1, 2017

9.1K
Electroretinogram Recording for Infants and Children under Anesthesia to Achieve Optimal Dark Adaptation and International Standards08:38

Electroretinogram Recording for Infants and Children under Anesthesia to Achieve Optimal Dark Adaptation and International Standards

Published on: September 3, 2020

6.1K

Related Concept Videos

Diagnostic and Statistical Manual of Mental Disorders (DSM)01:27

Diagnostic and Statistical Manual of Mental Disorders (DSM)

The Diagnostic and Statistical Manual of Mental Disorders (DSM) serves as the primary classification system for mental health disorders, providing standardized diagnostic criteria for clinicians and researchers. First published by the American Psychiatric Association (APA) in 1952, the DSM has undergone several revisions to reflect evolving psychiatric understanding. The fifth edition, DSM-5, released in 2013, introduced key updates that expanded diagnostic categories and modified diagnostic...
57
Conduct Disorder01:28

Conduct Disorder

Conduct disorder is a complex mental health diagnosis characterized by a repetitive and persistent pattern of behavior that violates societal norms, the rights of others, or age-appropriate rules. The diagnostic criteria for conduct disorder require the presence of at least three problematic behaviors within the past 12 months, with at least one occurring in the past six months. These behaviors are grouped into four categories: aggression toward people and animals; destruction of property;...
36
Methods of Documentation V: CBE01:23

Methods of Documentation V: CBE

Charting by Exception, or CBE, is a method of documentation used in healthcare, particularly in nursing, that focuses on documenting only significant or abnormal findings rather than recording every detail. This approach aims to streamline the documentation process, improve efficiency, and ensure that healthcare providers can quickly identify deviations from normalcy in patient assessments.
In CBE, healthcare professionals establish predefined standards of practice that define what constitutes...
903