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A Codeveloped Web-Based Disability Disclosure Toolkit for Youth With Disabilities: Mixed Methods Pilot Evaluation.
Sally Lindsay1,2, Polina Kosareva1, Nicole Thomson3
1Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada.
JMIR Formative Research
|December 8, 2023
Summary
This study pilot-evaluated a web-based toolkit to help young adults with disabilities disclose their needs and request workplace accommodations. The toolkit increased participants' knowledge and confidence in disclosure, though self-determination did not significantly improve.
Area of Science:
- Vocational Rehabilitation
- Disability Studies
- Employment Law and Policy
Background:
- Youth and young adults with disabilities face significant employment barriers, including discrimination and lack of support.
- Effective disclosure of disability and need for accommodations is crucial for workplace success but lacks evidence-based resources for youth.
- Developing self-advocacy skills is vital for this marginalized group in the labor market.
Purpose of the Study:
- To pilot-evaluate a web-based toolkit designed to improve disability disclosure for youth and young adults.
- To assess the toolkit's ability to enhance self-advocacy and the request for workplace accommodations.
Main Methods:
- Co-development of a web-based toolkit through two in-person focus groups with youth with disabilities.
- Pilot evaluation using a pre-post survey design.
- Primary outcomes included toolkit relevance, perceived impact on knowledge and confidence, and feedback on usefulness; secondary outcomes measured self-determination.
Main Results:
- Focus groups identified key themes: disability disclosure experiences, accommodation needs, and toolkit usefulness.
- Survey results indicated the toolkit significantly increased participants' knowledge (91%) and confidence (73%) regarding disability disclosure.
- Participants found the toolkit easy to understand and comprehensive, but no significant improvements in self-determination were observed.
Conclusions:
- Co-developing the toolkit with youth ensured its relevance and highlighted its potential as an educational resource.
- The toolkit shows preliminary promise for assisting youth with disabilities in employment.
- Further research with larger samples is necessary to confirm the impact of workplace disability disclosure decisions.
Keywords:
co-designdisabilitydisclosureemploymentpilot studyqualitativeusability testingvocational rehabilitationyouth and young adults
