Listen to the patients! Identifying CML patients' needs analyzing patient-generated content with AI-driven...

Area of Science:

• Oncology
• Pharmaceutical Sciences
• Health Services Research

Background:

• Patient support programs are vital for long-term treatment success.
• Pharmaceutical companies increasingly focus on patient support.
• Understanding patient perspectives is crucial for effective assistance.

Purpose of the Study:

• Assess pharmaceutical companies' patient engagement for chronic myeloid leukemia (CML).
• Evaluate if current offerings meet CML patient needs.
• Analyze patient-generated content to understand concerns regarding treatments and services.

Main Methods:

• Desk research to identify pharmaceutical companies and CML forums.
• AI-driven analysis (topic modeling, topic evolution) of patient-generated content (UGC).
• Examination of UGC from public forums to assess patient concerns and engagement.

Main Results:

• Pharmaceutical companies provide disease and treatment information.
• Industry significantly supports CML patients.
• Patient interests include disease, treatments, side effects, dosage, therapy switching, and stem cell transplantation.

Conclusions:

• The pharmaceutical industry generally meets CML patient needs.
• Areas for improvement include patient education on treatments/side effects and psychological support.
• Increased patient involvement in clinical trials is recommended.