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Palliative care for infants with life-limiting conditions: integrative review

Rebecca Iten1,2, Moira O'Connor3, Fenella J Gill3,2

  • 1Curtin University, Perth, Western Australia, Australia Rebecca.Iten@health.wa.gov.au.

BMJ Supportive & Palliative Care
|December 20, 2023
PubMed

Insights

Palliative care for infants with life-limiting conditions requires better coordination between primary and specialist teams. Enhancing palliative care education for healthcare professionals is crucial for improved infant and family experiences.

Area of Science:

  • Pediatric Palliative Care
  • Neonatal Healthcare
  • Life-Limiting Conditions

Background:

  • Infants with life-limiting conditions represent a diverse patient group.
  • Palliative care delivery for these infants occurs across various settings.
  • Interdisciplinary primary healthcare teams often manage care without specialist palliative care consultation.

Purpose of the Study:

  • To synthesize existing literature on palliative care delivery for infants under 12 months with life-limiting conditions.
  • To identify models of care and associated challenges.
  • To explore experiences of families and healthcare professionals.

Main Methods:

  • Integrative review of research published between 2010-2022.
  • Searched multiple databases including MEDLINE, CINAHL, and EMBASE.
  • Included 26 case series, 9 qualitative, 5 cross-sectional, and 1 quality improvement study; analyzed using deductive content analysis.

Main Results:

  • Two distinct models of palliative care delivery were identified, impacting care and experiences.
  • Healthcare professionals reported insufficient palliative care education and challenges in intensive care settings.
  • Barriers to advance care planning included prognostic uncertainty and end-of-life care transitions.

Conclusions:

  • Provision of infant palliative care involves complex issues.
  • Optimal care necessitates collaboration between primary and specialist palliative care services.
  • Prioritizing palliative care education for nurses and physicians is essential.
Abstract

Keywords:
Chronic conditionsCommunicationEducation and trainingEnd of life carePaediatricsSupportive care

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