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Published on: July 31, 2017
Parent Perspectives on Assisted Communication and Autism Spectrum Disorder.
John Damiao1, Galilee Damiao2, Catherine Cavaliere3
1John Damiao, PhD, MS, OTR/L, is Assistant Professor, Occupational Therapy, Pace University, Westchester Campus, Pleasantville, NY; johndamiao1@gmail.com.
Assisted communication (AC) significantly enhances the parent-child relationship for children with autism spectrum disorder (ASD). This technology improves understanding and planning for the future, despite challenges in professional support.
Area of Science:
- Pediatric Psychology
- Developmental Psychology
- Communication Sciences
Background:
- Parents of nonspeaking children with autism spectrum disorder (ASD) face unique communication challenges.
- The firsthand experiences of parents utilizing assisted communication (AC) with their children with ASD remain underexplored in existing literature.
Purpose of the Study:
- To investigate the lived experiences of parents whose children with ASD use assisted communication (AC).
- To understand the impact of AC on the parent-child relationship and family dynamics.
Main Methods:
- Conducted semistructured interviews with ten parents of individuals with ASD (aged 15-36) who use AC.
- Analyzed interview data to identify emergent themes and patterns in parental experiences.
Main Results:
- Four superordinate themes emerged: Relationship, Future, Support, and Understanding.
- AC use improved parent-child relationships and deepened parents' understanding of their child.
- Parents reported enhanced future planning capabilities and expressed a need for greater professional support and consensus on AC.
Conclusions:
- Assisted communication (AC) positively impacts the parent-child relationship for children with ASD.
- AC facilitates improved understanding and future planning for children with communication impairments.
- Occupational therapy interventions should consider AC programs to support these families.
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