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Living with chronic renal failure.

J M Reynolds, M E Garralda, R A Jameson

    Child: Care, Health and Development
    |November 1, 1986
    PubMed
    Summary
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    Children with chronic renal failure face significant family strain due to illness acceptance and future anxieties. Improved support and inter-agency communication are crucial for these pediatric patients.

    Area of Science:

    • Pediatric Nephrology
    • Child Psychology
    • Family Medicine

    Background:

    • Chronic renal failure in children presents ongoing medical challenges.
    • Despite advances in treatment, families experience considerable psychological and emotional strain.
    • Late-onset conditions and frequent hospitalizations exacerbate parental and child anxieties.

    Purpose of the Study:

    • To explore the psychological impact of chronic renal failure on children and their families.
    • To identify key stressors affecting pediatric patients with kidney disease.
    • To suggest improvements in family support systems and inter-agency communication.

    Main Methods:

    • Systematic interviewing of children diagnosed with chronic renal failure.
    • Qualitative assessment of family-reported concerns and anxieties.

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  • Analysis of challenges related to illness acceptance, treatment adherence, and long-term prognosis.

    • Main Results:

    • Families experience significant strain related to future uncertainties and illness acceptance.
    • Chronic symptoms like poor growth and incontinence are major sources of worry.
    • Communication gaps exist between healthcare providers, general practitioners, and schools.

    Conclusions:

    • Enhanced support for families of children with chronic renal failure is essential.
    • Increasing parental awareness of available community resources can alleviate strain.
    • Improved communication and collaboration among all involved agencies are vital for holistic care.