High-Quality eHealth Websites for Information on Endometriosis: Systematic Search
Diksha Sirohi1, Cecilia Hoi Man Ng2,3, Niranjan Bidargaddi4
1Robinson Research Institute, Adelaide Medical School, University of Adelaide, North Adelaide, Australia.
Journal of Medical Internet Research
|January 10, 2024
Summary
Four high-quality eHealth websites for endometriosis information were identified. These sites offer accurate, engaging content for patients and clinicians, though many lack references and authorship details.
Area of Science:
- Medical Informatics
- Digital Health
- Health Communication
Background:
- eHealth websites are increasingly vital resources for endometriosis information for both the community and clinicians.
- The quality of information on these platforms is critical, as poor-quality content can negatively impact users.
- A thorough evaluation is necessary to identify and recommend reliable endometriosis eHealth resources.
Purpose of the Study:
- To evaluate the quality of endometriosis eHealth websites.
- To recommend high-quality websites for community members and clinicians seeking endometriosis information.
Main Methods:
- A systematic review following PRISMA 2020 guidelines was conducted using Google searches for international and Australian eHealth websites.
- The ENLIGHT tool assessed website quality across domains including usability, visual design, user engagement, content, therapeutic persuasiveness, and alliance.
- Websites scoring 3.5 or higher on the ENLIGHT scale were classified as "good" and recommended.
Main Results:
- Eighty eHealth websites were assessed, identifying four high-quality sites: Endometriosis Australia Facebook Page, Endometriosis UK, National Action Plan for Endometriosis on EndoActive, and Adenomyosis by the Medical Republic.
- While most sites excelled in usability, visual design, and content, few provided references (25/63) or authorship details (26/63).
- User engagement (23%), therapeutic persuasiveness (3%), and therapeutic alliance (28%) were generally low, indicating areas for improvement.
Conclusions:
- Four high-quality endometriosis eHealth websites are recommended for patients and clinicians.
- Improving website quality requires providing evidence-based information with clear referencing and authorship.
- Enhancing user engagement, therapeutic persuasiveness, and alliance through shared experiences and co-created content can improve website uptake and impact.
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