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Implantation of Total Artificial Heart in Congenital Heart Disease
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Global Access to Comprehensive Care for Paediatric and Congenital Heart Disease

Dominique Vervoort1,2, Hyerang Jin3, Frank Edwin4,5

  • 1Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada.

CJC Pediatric and Congenital Heart Disease
|January 11, 2024
PubMed

Insights

Paediatric and congenital heart disease (PCHD) affects many children globally, yet lacks adequate attention. Improving healthcare systems is crucial to ensure equitable access to care for all PCHD patients worldwide.

Area of Science:

  • Cardiology
  • Global Health
  • Health Systems Research

Background:

  • Paediatric and congenital heart disease (PCHD) is a significant global health issue, affecting 1 in 100 live births.
  • Congenital heart disease (CHD) survival rates are high in high-income countries, but over 90% of patients in low- and middle-income countries lack necessary care.
  • Rheumatic heart disease (RHD) is the most common acquired cardiovascular disease in children and adolescents, impacting millions in low- and middle-income countries.

Purpose of the Study:

  • To review the current status of paediatric and congenital heart disease (PCHD) and adult congenital heart disease (ACHD) care globally.
  • To analyze PCHD and ACHD care through a health systems framework, including workforce, infrastructure, financing, service delivery, information management, and governance.
  • To identify knowledge gaps and opportunities for improving global access to PCHD and ACHD care.

Main Methods:

  • A comprehensive literature review and health systems analysis.
  • Examination of PCHD and ACHD care delivery across diverse healthcare settings.
  • Synthesis of data on challenges and successes in managing PCHD and ACHD.

Main Results:

  • Significant disparities in PCHD and ACHD care exist between high-income and low- and middle-income countries.
  • Key challenges in PCHD and ACHD management include inadequate healthcare infrastructure, workforce shortages, and limited financing.
  • Existing health systems present substantial barriers to accessing timely and effective care for individuals with PCHD and ACHD.

Conclusions:

  • Urgent global health agenda prioritization for PCHD and ACHD is needed.
  • Strengthening health systems is paramount to improving care access and outcomes for PCHD and ACHD patients worldwide.
  • Further research is essential to address knowledge gaps and drive innovation in PCHD and ACHD management.

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