The NeuroPoint alliance SRS & tumor QOD registries.

Area of Science:

• Neuro-oncology
• Quality Registries
• Real-World Evidence

Background:

• Deficiencies in existing population-based and quality registries for neuro-oncology were identified.
• Growing interest in real-world evidence necessitates improved data collection methods.

Purpose of the Study:

• To describe the design, features, and objectives of the NeuroPoint Alliance (NPA) Stereotactic Radiosurgery (SRS) and Tumor Quality Oncology Data (QOD) registries.
• To highlight the role of these registries in quality surveillance and real-world research in neuro-oncology.

Main Methods:

• Prospective, multi-institutional data collection.
• Central auditing for data quality assurance.
• Inclusion of patient-reported outcomes (PROs).

Main Results:

• The NPA SRS and Tumor QOD registries currently include over 4,500 and 2,500 patients, respectively.
• Caseloads primarily consist of brain metastases and primary extra-axial tumors.
• Registries provide quality reports to participating sites and serve as platforms for observational research.

Conclusions:

• The NPA SRS and Tumor QOD registries offer granular data on surgical variables and postoperative outcomes.
• These registries are valuable resources for real-time quality surveillance and real-world research in neuro-oncology.