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Intellectual disability (ID) is a neurodevelopmental condition characterized by deficits in intellectual and adaptive functioning that manifest during the developmental period. This condition encompasses challenges in reasoning, memory, problem-solving, and learning, accompanied by impairments in everyday life skills, such as communication, self-care, and social interactions. Intellectual disability affects approximately 1% of the population in the United States, impacting an estimated 5...
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Defining childhood disability: ICF-CY developmental code sets.

Kirsten M Ellingsen1, Rune J Simeonsson2,3

  • 1Licensed Psychologist, Private Practice Owner, Tampa, FL, USA.

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|January 19, 2024
PubMed
Summary
This summary is machine-generated.

This study developed age-based item code sets from the International Classification of Functioning, Disability and Health, Children and Youth version (ICF-CY). These reduced code sets simplify ICF-CY use in clinical practice, research, and policy for child development.

Keywords:
ICF-CYchildhood disabilityclassificationcode setsfunctioning

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Area of Science:

  • Child development research
  • Rehabilitation medicine
  • Public health policy

Background:

  • The International Classification of Functioning, Disability and Health, Children and Youth version (ICF-CY) contains over 1600 codes.
  • Universal implementation of the ICF-CY is an ongoing goal.
  • A need exists for simplified ICF-CY code sets for practical application.

Purpose of the Study:

  • To develop age-based item code sets derived from the ICF-CY.
  • To reduce the number of ICF-CY codes for easier clinical, research, and policy use.
  • To create a standardized tool for assessing child functioning across different age groups.

Main Methods:

  • Development of code sets using the Delphi method via consensus.
  • Involvement of a multi-disciplinary group of international experts from 5 WHO world regions.
  • Iterative online surveys to rate essential child functioning categories for inclusion.

Main Results:

  • Successful derivation of four age-based ICF-CY code sets.
  • Code sets contain 37, 52, 60, and 57 codes, respectively, across four ICF-CY domains.
  • High participant consensus achieved, with code sets aligning with developmental theory.

Conclusions:

  • The ICF-CY developmental code sets provide a universal language for childhood functioning and disability.
  • These code sets facilitate multidisciplinary research, clinical practice, and policy development.
  • The derived code sets represent essential indicators of functioning at key developmental stages.