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The Fibromyalgia Decomposition Phenomenon: A Reflexive Thematic Analysis
Bethany C Fitzmaurice1,2, Rebecca L Grenfell3, Nicola R Heneghan2
1Department of Pain Management, Sandwell and West Birmingham NHS Trust, Birmingham B18 7QH, UK.
Understanding fibromyalgia requires exploring patient experiences. This study identified key themes and a novel spiral model to improve care and functional outcomes for fibromyalgia patients.
Area of Science:
- Qualitative Health Research
- Phenomenology
- Patient Experience Studies
Background:
- Fibromyalgia presents complex biopsychosocial and environmental challenges.
- Healthcare professionals require deeper insights into patient experiences for effective engagement.
- Qualitative research methods are suitable for exploring lived experiences.
Purpose of the Study:
- To explore the lived experience of fibromyalgia prior to a novel intervention.
- To identify key themes and processes influencing patient decisions and lifestyle choices.
- To develop a framework for better patient-healthcare professional engagement.
Main Methods:
- Interpretive hermeneutic phenomenology within a pragmatic worldview.
- Purposive sampling of individuals with fibromyalgia.
- Thematic analysis of single interviews.
Main Results:
- 16 participants (mean age 47.1 years) were interviewed.
- Three main themes and 15 sub-themes were identified.
- A novel decomposition/recomposition spiral model emerged, linking different experiences.
Conclusions:
- Multiple components influence the fibromyalgia experience and related lifestyle choices.
- The identified spiral model can benefit both patients and healthcare professionals.
- Earlier diagnosis and broader treatment options can improve functional outcomes.
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