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Caregiver Experiences with Dementia-Related Feeding/Eating Difficulties
Shobha Sharma1,2, Nur Atiqah A Halim1, Puspa Maniam3
1Speech Sciences Programme, Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur 50300, Malaysia.
Healthcare (Basel, Switzerland)
|January 23, 2024
Summary
Caregivers face significant distress supporting individuals with dementia who experience feeding and eating difficulties. Early awareness and effective strategies are crucial for managing nutritional needs and reducing caregiver burden.
Area of Science:
- Gerontology
- Neuroscience
- Public Health
Background:
- Dementia significantly impacts feeding and eating abilities, leading to nutritional challenges.
- Caregiver support during mealtimes is vital but often inadequate.
- Understanding caregiver burden is essential for effective dementia care.
Purpose of the Study:
- To explore caregiver perceptions of feeding/eating difficulties in persons with dementia.
- To assess the support provided by caregivers and their associated burdens.
- To identify needs for improved mealtime care and caregiver well-being.
Main Methods:
- A cross-sectional study involving 31 caregivers.
- Online questionnaire assessing sociodemographics, feeding/eating problems, support needs, and caregiver burden.
- Utilized adapted Appetite and Eating Habits Questionnaire (APEHQ) items.
Main Results:
- Nearly all persons with dementia exhibited feeding/eating problems requiring varied caregiver assistance.
- Caregivers reported high levels of distress, correlated with dementia severity.
- Significant need for enhanced caregiver support and education was identified.
Conclusions:
- Raising caregiver awareness of dementia's impact on eating is critical.
- Effective mealtime strategies and self-care are essential for caregivers.
- Healthcare professionals should develop targeted interventions to support caregivers and improve nutrition for individuals with dementia.
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