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Early educational attainment in children with major congenital anomaly in the UK
Zoë E Wands1,2, Daniel G W Cave3,2, Kirsten Cromie3
1Leeds Institute for Data Analytics (LIDA), University of Leeds, Leeds, UK zoe.wands@nhs.net.
Insights
Children with major congenital anomalies (CA) face significantly poorer educational outcomes and require more special educational needs (SEN) support. Early intervention and collaboration between health and education services are crucial for CA survivors.
Area of Science:
- Pediatric Health
- Developmental Pediatrics
- Educational Psychology
Background:
- Major congenital anomalies (CA) can impact a child's development and educational trajectory.
- Understanding the educational needs of children with CA is vital for providing appropriate support.
Purpose of the Study:
- To compare early educational attainment and special educational needs (SEN) provision in children with major CA versus their peers.
- To identify specific CA types associated with poorer academic outcomes.
Main Methods:
- Analysis of linked educational and health data from the Born in Bradford cohort study.
- Inclusion of 555 children with major CA and 11,188 controls.
- Multivariable logistic regression to adjust for confounders.
Main Results:
- Children with CA were more likely to receive SEN provision (41% vs. 14%) and perform below expected standards at Key Stage 1 (48% vs. 29%).
- Adjusted odds of receiving SEN and underperforming were significantly higher for children with CA (4.30 and 3.06 times, respectively).
- Genetic, heart, neurological, urinary, gastrointestinal, and limb anomalies were linked to poorer academic achievement.
Conclusions:
- Children with urinary, limb, and gastrointestinal CAs show poor educational attainment.
- Collaboration between health and education services is essential to support CA survivors.
- Ensuring CA survivors can maximize their potential requires integrated care and support.
Objective:
To describe early educational attainment and special educational needs (SEN) provision in children with major congenital anomaly (CA) compared with peers.
Design:
Analysis of educational data linked to the ongoing Born in Bradford cohort study. Confounders were identified via causal inference methods and multivariable logistic regression performed.
Setting:
Children born in Bradford Royal Infirmary (BRI), West Yorkshire.
Patients:
All women planning to give birth at BRI and attending antenatal clinic from March 2007 to December 2010 were eligible. 12 453 women with 13 776 pregnancies (>80% of those attending) were recruited. Records of 555 children with major CA and 11 188 without were linked to primary education records.
Outcomes:
Key Stage 1 (KS1) attainment at age 6-7 years in Maths, Reading, Writing and Science. SEN provision from age 4 to 7 years.
Results:
41% of children with major CA received SEN provision (compared with 14% without), and 48% performed below expected standards in at least one KS1 domain (compared with 29% without). The adjusted odds of children with CA receiving SEN provision and failing to achieve the expected standard at KS1 were, respectively, 4.30 (95% CI 3.49 to 5.31) and 3.06 (95% CI 2.47 to 3.79) times greater than their peers. Those with genetic, heart, neurological, urinary, gastrointestinal and limb anomalies had significantly poorer academic achievement.
Conclusions:
These novel results demonstrate that poor educational attainment extends to children with urinary, limb and gastrointestinal CAs. We demonstrate the need for collaboration between health and education services to assess and support children with major CA, so every CA survivor can maximise their potential.
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