Early educational attainment in children with major congenital anomaly in the UK

Zoë E Wands1,2, Daniel G W Cave3,2, Kirsten Cromie3

  • 1Leeds Institute for Data Analytics (LIDA), University of Leeds, Leeds, UK zoe.wands@nhs.net.

PubMed

Insights

Children with major congenital anomalies (CA) face significantly poorer educational outcomes and require more special educational needs (SEN) support. Early intervention and collaboration between health and education services are crucial for CA survivors.

Area of Science:

  • Pediatric Health
  • Developmental Pediatrics
  • Educational Psychology

Background:

  • Major congenital anomalies (CA) can impact a child's development and educational trajectory.
  • Understanding the educational needs of children with CA is vital for providing appropriate support.

Purpose of the Study:

  • To compare early educational attainment and special educational needs (SEN) provision in children with major CA versus their peers.
  • To identify specific CA types associated with poorer academic outcomes.

Main Methods:

  • Analysis of linked educational and health data from the Born in Bradford cohort study.
  • Inclusion of 555 children with major CA and 11,188 controls.
  • Multivariable logistic regression to adjust for confounders.

Main Results:

  • Children with CA were more likely to receive SEN provision (41% vs. 14%) and perform below expected standards at Key Stage 1 (48% vs. 29%).
  • Adjusted odds of receiving SEN and underperforming were significantly higher for children with CA (4.30 and 3.06 times, respectively).
  • Genetic, heart, neurological, urinary, gastrointestinal, and limb anomalies were linked to poorer academic achievement.

Conclusions:

  • Children with urinary, limb, and gastrointestinal CAs show poor educational attainment.
  • Collaboration between health and education services is essential to support CA survivors.
  • Ensuring CA survivors can maximize their potential requires integrated care and support.
Abstract

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