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Palliative Care for Newborns in India: Patterns of Care in a Neonatal Palliative Care Program at a Tertiary

Mohammad Ishak Tayoob1, Spandana Rayala1, Megan Doherty2,3,4

  • 1Pain Relief and Palliative Care Society, Hyderabad, India.

Health Services Insights
|January 25, 2024
PubMed

Insights

Implementing neonatal palliative care in India

Area of Science:

  • Pediatrics
  • Palliative Care
  • Neonatal Medicine

Background:

  • Neonatal palliative care addresses infants with life-limiting conditions.
  • India faces a high burden of neonatal deaths, with limited palliative care evidence.
  • Neonatal intensive care units (NICUs) require specialized support for these infants and families.

Purpose of the Study:

  • To describe the development and implementation of a neonatal palliative care program in a government hospital NICU.
  • To identify patterns of care, barriers, and enablers for a pilot program.
  • To assess the feasibility of hospital-based neonatal palliative care in India.

Main Methods:

  • An 8-month pilot program was implemented in a tertiary government hospital NICU.
  • A multidisciplinary team (physicians, nurse, counselor) provided care.
  • Referrals, care patterns, and outcomes were tracked over 10 months post-pilot.

Main Results:

  • 110 referrals were received, with 89 (81%) deaths and 18 (16%) survivors at follow-up.
  • The program managed physical, psychosocial, and spiritual needs.
  • Monthly referrals showed a steady increase, indicating growing need and acceptance.

Conclusions:

  • A hospital-based neonatal palliative care model is feasible in Indian NICUs.
  • Partnerships with charities are crucial for funding, training, and capacity building.
  • Successful implementation requires addressing physical and psychosocial needs of neonates and families.

Keywords:
Palliative carechildrenend of lifehospiceneonatalterminal care

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