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Published on: October 3, 2018
Describing Outcomes in Autistic Young Adults One Year After High School Graduation.
Gael I Orsmond1, Sharada G Krishnan2, Elizabeth G S Munsell3
1Department of Occupational Therapy, Boston University, 635 Commonwealth Ave, Boston, MA, 02215, USA. gorsmond@bu.edu.
This study shows that tailored outcome measures reveal positive results for autistic young adults in education, social connection, and independence. A neurodiversity approach offers a more optimistic view of autistic adult outcomes.
Area of Science:
- Neurodevelopmental disorders
- Autism Spectrum Disorder (ASD) research
- Young adult outcomes
Background:
- Previous research indicates poor outcomes for autistic adults in employment, independent living, and social relationships.
- Limitations in prior studies' measurement and samples may have overestimated negative outcomes.
- A need exists for outcome measures reflecting young adulthood and autistic individuals' perspectives.
Purpose of the Study:
- To develop and describe a novel measurement approach for autistic young adult outcomes.
- To pair objective indicators with subjective satisfaction indicators for a comprehensive assessment.
- To capture outcomes within the specific context of young adulthood and from the perspective of autistic individuals.
Main Methods:
- Thirty-six autistic young adults and a parent completed self-report surveys.
- Objective and subjective (satisfaction) outcome indicators were defined across three domains: productivity, social well-being, and living situation.
- Data collection focused on employment/education, friend contact frequency, and daily life autonomy.
Main Results:
- Three-quarters of autistic young adults reported at least 5 out of 6 positive outcomes.
- Over 90% were engaged in education, work, or transition programs and satisfied with this productivity.
- More than 75% had sufficient friend contact and were satisfied with their social lives; most reported moderate autonomy and were satisfied with their living situation.
Conclusions:
- Tailored outcome measurement for autistic young adults yields a more optimistic portrayal than prior literature.
- The developed approach aligns with a neurodiversity framework.
- This methodology may be valuable for assessing transition services and interventions for autistic individuals.
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