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Exploring critical factors in pediatric palliative care in Latin America: A scoping review
Laia Riera-Negre1, Paula Hidalgo-Andrade2, Maria R Rosselló1
1Department of Applied Pedagogy and Educational Psychology, University of the Balearic Islands, Palma, Spain.
Insights
Pediatric palliative care in Latin America faces significant challenges, including limited resources and policies. More research is needed to improve care access and quality across the region.
Area of Science:
- Palliative Care
- Global Health
- Health Services Research
Background:
- Pediatric palliative care (PPC) is crucial for improving quality of life for children with serious illnesses.
- Latin America presents unique challenges and opportunities for PPC development.
Purpose of the Study:
- To provide a comprehensive overview of the current state of PPC in Latin America.
- To identify policies, resources, challenges, and evidence-based recommendations for PPC in the region.
Main Methods:
- A scoping review methodology was employed.
- Searched peer-reviewed articles in English, Portuguese, and Spanish from the last decade.
- Included review and empirical studies on PPC in Latin America.
Main Results:
- 30 publications were identified, with most research concentrated in Brazil, Mexico, and Chile.
- A scarcity of comprehensive research and specific studies on PPC in Latin America was noted.
- Key challenges include resource limitations, lack of dedicated policies, and the need for interdisciplinary teams.
Conclusions:
- There is a critical need for expanded and more representative research in Latin American PPC.
- Continuous updating of scientific evidence is essential for enhancing PPC services.
- Recommendations aim to improve PPC services and accessibility throughout Latin America.
Abstract:
This scoping review aimed to provide an overview of the current landscape of pediatric palliative care in Latin America, including policies, regulations, available resources, challenges, barriers, and evidence-based recommendations. We conducted a comprehensive search for peer-reviewed articles related to pediatric palliative care in Latin America, considering both review and empirical articles published in English, Portuguese, or Spanish within the last decade. Our review initially identified 30 publications, which were subjected to a full-text assessment. The majority of these articles originated from Brazil, Mexico, and Chile, highlighting a regional concentration of research efforts. Notably, we observed a scarcity of comprehensive research and specific studies on pediatric palliative care in Latin America. Our findings revealed significant challenges, including resource limitations, the absence of dedicated policies, and the critical need for interdisciplinary teams to address the multifaceted aspects of pediatric palliative care. In light of our review, we emphasise the necessity for more extensive and representative research efforts, as well as the continuous updating of scientific evidence in the field of pediatric palliative care within the Latin American context. The recommendations derived from this review aim to contribute to the enhancement of pediatric palliative care services and accessibility throughout Latin America.
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