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Advice to Clinicians From Expectant Parents at Extreme Prematurity: A Multimethod Study
Anne Sullivan1,2, Bonnie Arzuaga2,3, Donna Luff4,2
1Division of Newborn Medicine.
Pediatrics
|February 7, 2024
Summary
Parents facing extreme prematurity births desire compassionate communication and support from clinicians. This study identified 14 parent-derived recommendations to improve counseling, focusing on engagement, team alignment, and follow-up care.
Area of Science:
- Perinatal medicine
- Clinical communication
- Patient-centered care
Background:
- Clinicians frequently miss opportunities for effective patient-centered counseling regarding extreme prematurity.
- Effective communication is crucial for parental knowledge, decision-making, and emotional support in high-risk pregnancies.
Purpose of the Study:
- To determine empirical, parent-derived recommendations for clinicians counseling families on extreme prematurity.
- To enhance parental knowledge, decision-making, and emotional support through improved counseling strategies.
Main Methods:
- Semi-structured interviews and questionnaires were administered to pregnant women (and partners) between 22 0/7 and 25 6/7 weeks' estimated gestation.
- Thematic analysis was employed to identify parental preferences and advice for clinicians.
Main Results:
- Data from 39 interviews and 47 questionnaires (representing 62 consultations) were analyzed.
- Fourteen parent-derived recommendations were identified, focusing on compassionate engagement, family support, clear communication, team alignment, and follow-up.
Conclusions:
- An empirical, parent-derived, family-centered approach to counseling on extreme prematurity is presented.
- Future research should broaden patient diversity and evaluate the impact of these recommendations on counseling outcomes.
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