A Comprehensive Scoping Review of Caregivers' Experiences With Augmentative and Alternative Communication and Their Collaboration With School Professionals.

John Kim¹, Gloria Soto²

¹Joint Doctoral Program in Special Education, University of California-Berkeley and San Francisco State University.

Language, Speech, and Hearing Services in Schools

|February 7, 2024

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View abstract on PubMed

Summary

Caregiver involvement is key for augmentative and alternative communication (AAC) success. Understanding family experiences with AAC systems and school collaboration can prevent abandonment.

Area of Science:

Speech and Language Pathology
Human-Computer Interaction
Family Studies

Background:

Successful implementation of augmentative and alternative communication (AAC) systems at home relies heavily on parent engagement.
Understanding caregiver experiences is crucial for effective AAC integration and preventing system abandonment.

Purpose of the Study:

To explore caregivers' experiences with AAC systems.
To investigate caregiver collaboration with school professionals during AAC implementation.
To identify factors contributing to AAC system abandonment.

Main Methods:

Qualitative review of 27 peer-reviewed studies.
Included semistructured interviews, focus groups, and ethnographic investigations.
Synthesized data from 319 caregivers.

Main Results:

Inductive analysis identified three key themes: the family unit, service providers, and the AAC system.
Caregiver experiences highlight the need for collaborative AAC service provision.
The study identified critical factors influencing AAC adoption and abandonment.

Conclusions:

Emphasizes the necessity of participatory practices and family involvement in co-constructing AAC services.
Recommends future research to implement and validate collaborative approaches for improved AAC outcomes.
Suggests that active family participation is vital for sustained AAC use.

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