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Genomes for Nurses: Understanding and Overcoming Barriers to Nurses Utilizing Genomics
Stacy Hines-Dowell1, Elizabeth McNamara1, Roya Mostafavi1
1St. Jude Children's Research Hospital, Memphis, TN, USA.
Pediatric oncology nurses need more genomics education. Over 50% feel unprepared to discuss genomic testing with families, highlighting a key barrier to integrating this vital cancer care technology.
Area of Science:
- Genomic medicine
- Pediatric oncology nursing
Background:
- Genomic testing is crucial in pediatric oncology for diagnosis, prognosis, and targeted therapies.
- Pediatric oncology nurses often lack foundational genomics knowledge and confidence in clinical application.
Purpose of the Study:
- To explore barriers to genomics literacy among pediatric oncology nurses, nurse practitioners, and physician assistants.
- To identify educational needs and preferences for genomics education in pediatric cancer care.
Main Methods:
- An electronic survey assessed knowledge, comfort levels, and educational preferences.
- Five focus groups provided in-depth qualitative data on barriers and needs.
- Data analysis involved ranking strategies and transcription of focus group discussions.
Main Results:
- More than 50% of respondents reported discomfort or unpreparedness in addressing patient/family genomics questions.
- This lack of confidence was identified as the primary barrier to utilizing genomic information in practice.
- Significant need for additional genomics education was indicated by the survey and focus groups.
Conclusions:
- Pediatric oncology nurses require enhanced genomics education to effectively integrate genomic testing into patient care.
- Findings will inform the development of a targeted pediatric cancer genomics curriculum for nursing professionals.
- Improving genomics literacy is essential for empowering nurses in the era of precision oncology.
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