Applicability of the PedsQLTM 4.0 Generic and Fatigue Modules in Romanian Children with Inflammatory Bowel Disease:

Andreea Ioan1, Mara-Ioana Ionescu1,2, Catalin Boboc1

  • 1Department of Pediatrics, Marie Curie Emergency Children's Hospital, 041451 Bucharest, Romania.

Maedica
|February 13, 2024
PubMed

Insights

The Romanian PedsQL tool reliably measures health-related quality of life and fatigue in children with inflammatory bowel disease (IBD), showing lower quality of life in affected children.

Area of Science:

  • Pediatric Health Outcomes
  • Quality of Life Measurement
  • Gastroenterology

Background:

  • The Pediatric Quality of Life (PedsQL) Inventory assesses Health Related Quality of Life (HRQoL) in children.
  • This study evaluated the Romanian PedsQL Generic Core and Multidimensional Fatigue Scales in children with Inflammatory Bowel Disease (IBD).

Discussion:

  • The Romanian PedsQL demonstrated feasibility and reliability in assessing HRQoL and fatigue in pediatric IBD patients.
  • Results showed significantly lower HRQoL and higher fatigue levels in children with IBD compared to healthy controls.
  • The tool exhibited good internal consistency (>0.70) with minimal missing data.

Key Insights:

  • The PedsQL effectively differentiates between children with IBD and healthy controls regarding HRQoL and fatigue.
  • Validated Romanian versions of PedsQL modules are crucial for assessing pediatric IBD patient well-being.
  • Lower HRQoL and increased fatigue are key indicators in pediatric IBD.

Outlook:

  • Further multi-centric studies with larger cohorts are needed to fully validate the PedsQL modules for clinical activity severity correlation.
  • Expanding the use of validated PedsQL tools can improve patient-centered care in pediatric gastroenterology.
  • Future research should focus on longitudinal studies to track HRQoL changes in pediatric IBD over time.

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